This post is in solidarity with and support of the Broke-Ass Bride Dishing for Dana fundraising campaign. Please go check out her story, and help her out if you can/want (but don’t look too closely at the pictures if you have a sensitivity about people getting poked in the eye).
So, I have psoriasis. It is suspected by my rheumatism specialist that I have psoriatic arthritis also. These are both autoimmune diseases (my immune system attacks me!). But! At least for now, it’s not a big issue for me. I suffer far, far, farrrrr less than many others with psoriasis, and/or other autoimmune diseases. With the exception of the horrendous outbreak I had from head to toe in 2004, my skin afflictions are minor, and few and far between (thanks to my dermatologist who taught me how to keep outbreaks at bay: basically, moisturize like hell, and try not to stress). And once I realized what my random joint problems were and how to treat them, I have rarely had a prolonged issue with that either. So I am lucky.
My biggest frustration with it, honestly, has been dealing with general practitioners who misdiagnosed and mistreated me for Years before I finally got referred to a dermatologist. For some reason, doctors love diagnosing eczema and tendonitis. My more-often-than-not lack of insurance might have made them hesitate to refer me to a specialist, knowing I couldn’t afford it? I don’t know.
I have had on and off gastroenterological (is that a word?) issues as well, which I have been curious about possibly having an autoimmunity explanation, but have not been diagnosed. As yet my symptoms in that department have not been consistent enough to make me go out of my way for a diagnosis. Also sometimes reading up about this stuff makes me wonder if it’s all in my head. The whole WebMD effect, you know? You put in a symptom and it comes back with CANCER or something really scary, and all you had was a little indigestion.
All this is my rambly and round-about way of pointing out that autoimmune diseases are often mis- or undiagnosed and more awareness in this department is absolutely needed! Which is why I’m happy to have found, through Dana, the American Autoimmune Related Disease Association (AARDA). And which is why I am happy to raise a tiny bit more awareness (all 10 of you who might read this! haha) for Dana’s campaign. I can feel good for helping her because I think she’s a cool girl (and her wedding photos send me into fantasyland heaven every time I see them – not that that’s a good reason to like someone haha); and because she’s sending some of the proceeds to AARDA, I can feel good for helping myself and others with autoimmunity issues.
Good luck Dana! Here’s hoping our stupid health care system will be fixed before our country’s children have to suffer through your kind of nightmare.
My sister-in-law has psoriasis and was told to limit gluten in her diet (I know, it is blamed for EVERYTHING these days). She says that it has helped and I did find some supporting evidence.
oh nooo! I’m not sure I’m ready to go no- or low-gluten. but that’s really interesting – and it is pretty crazy how gluten is blamed for so many things, but I know often it really does make a difference to restrict it from your diet. I probably will try to cut gluten when/if my psoriasis becomes a real problem. thanks for the info! :)
Thanks for this!
You have a blog! I’m slow.
I’m really glad you shared this, I’ve only been reading Broke Ass Bride for a little while (too scared to leave safe-APW land), but I’m so inspired by her story. I don’t have much experience with auto-immune diseases, but have had plenty of firsthand experience with an assortment of other health woes and the stupidity of the health-care system. I (and I’m guessing I’m not alone in this) have a tendency to find ways to put strangers/bloggers on pedestals, and yet its way more amazing/inspiring to see the real stories of what is going on with people.